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Connect with an LGS Patient Navigator or Family Ambassador
Your Situation Is Unique, But It Doesn’t Need To Be Isolating.
The LGS Foundation firmly believes that everyone living with LGS should have access to the information, resources, and support they deserve. Furthermore, this includes information on how to connect with others.
Our free, confidential Patient Navigator & Family Ambassador program aims to connect you with emotional and practical support at every step of the journey, whether that is learning more about LGS, talking to another parent, learning about clinical trials, navigating transitioning from child to adult healthcare, identifying digital resources, finding assistance programs, navigating insurance questions, preparing for your first visit with a child neurologist, and more.
No matter what point of the journey you are on, LGS is life-changing.
Our Navigators and Ambassadors are here for you!
Frequently Asked Questions
What is the LGS Patient Navigator & Family Ambassador program?
LGS Foundation’s Patient Navigator & Family Ambassador program consists of emotional, relational, and practical support from a peer who has had similar experiences navigating the LGS journey.
How can peer support help me?
Peer support is a powerful opportunity to get advice and mentorship from someone who has real-life experiences similar to what you may be facing. Whether you need advice on the next steps, are looking for guidance with a specific challenge, or simply need to voice your fears and stresses to someone who understands.
What kind of questions can I ask?
There are no wrong questions. We might not always be able to give you the answer you’re looking for straight away — in some cases, there may not even be a single right answer — but we’re here so you don’t have to look for the answers alone.
How much does peer support cost?
Our Patient Navigator & Family Ambassador Program is free to parents, caregivers, and siblings impacted by LGS.
How do I connect with an LGS Patient Navigator and/or Family Ambassador?
Fill out the form below with some details about who you are and what you need. An LGS Foundation representative will follow up within a few days.
Interested in supporting others? Join our Patient Navigator & Family Ambassador team. Learn More Here ↗
For more information about our Patient Navigator & Family Ambassador Program, email FamilySupport@lgsfoundation.org.
Request an LGS Family Ambassador
Complete the six required fields below, then tick the consent checkbox and select “Email my request to the Foundation”. Additional details are optional. Fields marked * are required. Your details are emailed to FamilySupport@LGSFoundation.org for support follow-up and are not saved as a personal record in this app. A private submission timestamp is retained to limit repeated emails. Share only what you are comfortable sending by email.
Sign in to send an email request. No login is needed to read the resources or use the Foundation’s official form.
Sign in to send a requestOpens the Foundation’s form in a new tab (EveryAction)