No login needed · Personal records saved on this device only

About this app

LGS Family Companion

LGS Foundation

6030 Santo Road, Suite 1, Unit 420878
San Diego, CA 92142

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Your records on this device

No account or login is needed. Caregiver journals, wellness check-ins, treatment trackers, action plans, signed plan photos, and checklist progress are saved only in this browser on this device, not in the cloud. They do not sync to other devices. Anyone using this browser can view them, so use a trusted device. Clearing browser data removes these records; private browsing may remove them when it closes. Journals are not monitored or analyzed. Seizure tracking is available through the separate SeizureTracker service; no information is automatically transferred there. Previous seizure log entries remain on this device and can be downloaded from the SeizureTracker card under Seizure Emergencies and Planning. Use the existing print and export options to keep copies of your plan and previous seizure records.

Credit

Content adapted from the LGS Foundation's New Family Welcome Kit (https://www.lgsfoundation.org/new-lgs-family-kit/). The Seizure First Aid sheet and Acute Seizure Action Plan template come from the kit's "Seizure First Aid" PDF (Seizure Action Plan template ©2021 Neurelis, Inc.; learn more at seizureactionplans.org). The Seizure Action Plan postcard is from the Seizure Action Plan Coalition. LGS Foundation®, 6030 Santo Road, Suite 1, Unit 420878, San Diego, CA 92142 · info@lgsfoundation.org · (718) 374-3800 · www.LGSFoundation.org.

Disclaimers

General information

This app is for information and personal record-keeping only. It is not medical advice and does not replace your healthcare provider. Always follow the Seizure Action Plan from your doctor. In an emergency, call 911.

Not medical advice. In an emergency, call 911.

LGS Foundation information

The information here is not intended to provide diagnosis, treatment, or medical advice and should not be considered a substitute for advice from a healthcare professional. Content provided is for informational purposes only. LGSF is not responsible for actions taken based on the information included on this webpage. Please consult with a physician or other healthcare professional regarding any medical or health-related diagnosis or treatment options.

Treatment resources

This is information, not medical advice. Always follow your healthcare provider’s instructions.

None of the information herein constitutes medical advice, diagnosis, treatment, or recommendation. Always seek the advice of your doctor, or other qualified health professional, with any questions about or related to a medical condition.

Research and AI summaries

For information, not medical advice or trial matching. AI summaries can be inaccurate and are not clinician-reviewed. Always check the linked original and talk with your care team.

PubMed indexing and registry inclusion are not endorsements or guarantees of quality, safety, or effectiveness.

These searches may miss relevant research and do not cover all LGS news. Source changes can take time to appear. Check the source dates and recruitment details, and discuss study participation and treatment questions with your clinician. Do not change medicines based on this feed.

Caregiver well-being

For personal reflection, not diagnosis or treatment.

Check-ins are app-created reflections, not clinical screening tools.

This journal is not monitored, and a check-in cannot assess your safety. You do not need a high score to ask for help.

Sibling and family forms

This is a sibling support plan, not the medical Seizure Action Plan from your healthcare provider.

This form describes family arrangements; it does not replace a clinician-provided medical action plan.

In a medical emergency, follow your healthcare provider’s Seizure Action Plan. In an emergency, call 911.

Illustrations

Peer support

Please note that we can’t provide medical advice.

Research recruitment

A recruiting label is not a guarantee of an open local site or eligibility. Confirm all criteria and current availability with the study team and your clinician.

Third-party resources

A listing is not an endorsement, and the Foundation is not responsible for those sites’ content or privacy policies.

This is information about a provider, not an endorsement or a recommendation to purchase testing.

LGS provider directory

Not all of the doctors and other professionals listed on this site have the same treatment approach. We urge you to ask specific questions regarding training and experience before seeking treatment. Your decision to select a particular health care provider and/or treatment option is yours alone, and LGSF bears no responsibility for the care provided by any professional listed on this site or for the outcome of any treatment option you may select.

Well-being support suggestions

This is an invitation to connect, not a diagnosis or a measure of how well you are caregiving. If your feelings are persistent, worsening, or affecting daily life, consider talking with a qualified mental-health professional.

Storyboard previews

Review document only. Previews are read-only, not medical tools. Not medical advice. In an emergency, call 911.

Sources

Genetic resource sources

Considering Genetic Testing? Start here.
In-app summary adapted from Child Neurology Foundation. Source checked October 21, 2026.
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What You Need to Know About Genetic Testing
In-app summary adapted from LGS Foundation. Source checked October 21, 2026.
The kit lists this title without a direct URL. This reading uses the verified source named here.
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Genetic Testing Overview
In-app summary adapted from MedlinePlus Genetics · U.S. National Library of Medicine. Source checked October 21, 2026.
The kit lists this title without a direct URL. This reading uses the verified source named here.
View original Source: understanding genetic test results
Your Health Starts in Your Genes
In-app summary adapted from Invitae · Labcorp. Source checked October 21, 2026.
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ILAE: Genes in Epilepsy
In-app summary adapted from International League Against Epilepsy. Source checked October 21, 2026.
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Adapted from ILAE EpilepsyDiagnosis.org text, last updated June 30, 2024. Changes: shortened and rewritten in plain language. This text adaptation is shared under CC BY-SA 4.0.
ILAE: Genes in LGS
In-app summary adapted from International League Against Epilepsy. Source checked October 21, 2026.
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Adapted from ILAE EpilepsyDiagnosis.org text, last updated June 30, 2024. Changes: shortened and rewritten in plain language. This text adaptation is shared under CC BY-SA 4.0.
Genetic testing and additional family resources
In-app summary adapted from LGS Foundation. Source checked October 21, 2026.
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Fact sheet references

Arzimanoglou A, et al. Epileptic Disord. 2011;13(Suppl 1):S3-S13
Berg AT, et al. Epilepsia. 2018;59(11)
Bourgeois BF, et al. Epilepsia. 2014;55(Suppl 4)
Cross JH, et al. Front Neurol. 2017;8:505
Goldsmith IL, et al. Epilepsia. 2000;41(4)
LGS Foundation Caregiver Concerns Survey 2018
McTague A, et al. Lancet Neurol. 2016;15(3)

View original (Spanish)

Diet therapy references

View original

Kwan P., Brodie, MJ. N Engl J Med. 2000;342:314-31. Early identification of refractory epilepsy.
Kossoff EK, Zupec-Kania BA, Auvin S. Optimal clinical management of children receiving dietary therapies for epilepsy: Updated recommendations of the International Ketogenic Diet Study Group. Epilepsia Open, 1–18, 2018 doi: 10.1002/epi4.12225
Martin K, Jackson CF, Levy RG, Cooper PN. Ketogenic diet and other dietary treatments for epilepsy. Cochrane Database of Systematic Reviews 2016, Issue 2. Art. No.: CD001903. DOI: 10.1002/14651858.CD001903.pub3.

Artwork and template credits

Original brain illustration from page 18 of the LGS Foundation About LGS Treatments Kit.
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Charlie Foundation logo and diet therapy comparison chart, included in the LGS Foundation About LGS Treatments Kit. The comparison chart is presented as an accessible table in the app.
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Matthew’s Friends logo from page 15 of the LGS Foundation About LGS Treatments Kit.
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Pediatric Epilepsy Surgery Alliance logo from page 19 of the LGS Foundation About LGS Treatments Kit.
View original PDF
National Institute on Aging, National Institutes of Health: 5 Ways to Make the Most of Your Doctor Visit, included on page 24 of the LGS Foundation About LGS Treatments Kit.
View original PDF
Original artwork from Navigating the LGS Maze.
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Original SUDEP infographic included in the LGS Foundation Treatments Kit.
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Original Types of Epilepsy Surgery infographic included in the Treatments Kit.
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Original epilepsy genetics figure (Ruggiero, Xian, and Helbig, 2023), included in the Treatments Kit.
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Original Child Neurology Foundation toolkit previews included in the Treatments Kit.
View original PDF
Original newsletter artwork from the LGS Foundation Treatments Kit.
View original PDF

View original View original family awareness letter

Sources & AI

This feed retrieves public records directly from ClinicalTrials.gov and PubMed, services of the U.S. National Library of Medicine. Registry content is submitted by study sponsors or investigators.

AI summarizes only retrieved record text, with no access to your journal, check-ins, action plan, or other personal records. Original source text and links are provided for checking. Up to eight new or changed records per source receive summaries each daily run; other records remain readable as source text.

Search ClinicalTrials.gov

Opens the official U.S. clinical study registry

Search PubMed

Opens the National Library of Medicine’s literature search

LGS Foundation clinical trial resources

Opens LGS Foundation website · Not automatically monitored by this feed