Resources

Learn the basics of Lennox-Gastaut Syndrome.

Explore anti-seizure medications, diet, neuromodulation, surgery, complementary therapies, clinical trials, and treatment trackers in the app.

Explore the introductory guide whenever you need it.

LGS is hard. Finding information doesn't need to be.

free kit for families new to LGS or the Foundation (mailed to U.S. residents only).

articles on finding a doctor, epilepsy surgery, seizure clusters, and more.

expert videos on navigating the LGS maze.

Open the step-by-step checklist, resume progress saved on this device, and use digital treatment trackers or printable PDFs.

home safety, seizure emergencies, and when to call the neurologist.

why SAPs matter and how to create and share one.

complete your plan with your doctor, save it on this device, and view or share it without leaving the app.

gentle check-ins and a personal journal saved on this device.

moderated online support groups, including the private Facebook family group.

free, confidential connection to volunteer LGS caregivers.

financial help for seizure alert and safety equipment not covered by insurance (currently closed as of Oct 1, 2026).

all VIP resources, device-saved sibling tools, and kit requests in one dedicated area.

calendar of in-person and virtual events (walks, conference, meetups).

free seizure diary website and apps for timing, video, reports, and sharing.

familysupport@lgsfoundation.org

daily ClinicalTrials.gov and PubMed checks, with source links and labeled AI summaries.

share medical records and survey data to help research.

year-round research grants for scientists.

research network conference of scientific, medical, and family experts.

three-day educational meeting for families and professionals.

annual walk, ride, and roll fundraiser.

yearly online and in-person awareness events.

bring the family voice to federal and state government.

https://www.lgsfoundation.org/

monthly news on research, programs, and events.

Facebook, Instagram, TikTok, LinkedIn, and more.

info@lgsfoundation.org · (718) 374-3800

order mailed kits and cards, or download the C.A.R.E. Binder and fact sheets.

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the "Medikidz explain Lennox-Gastaut Syndrome" comic book, the HOPE magnet, and the Purple Day bookmark. These are available in the mailed kit only.