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Prognosis for Those With LGS
Is there a cure for LGS?
- There is no cure for LGS.
- Seizures may go into remission but may also recur.
- It is important to try to achieve the best possible seizure control in LGS.
What is likely to happen in the future for those with LGS?
- The prognosis for LGS is poor, and the progression of LGS is almost always associated with developmental slowing and/or regression.
- Despite the best treatments, more than 85% of children with LGS will continue to have seizures into adulthood. The LGS Foundation is working hard to change this.
- Because of the abnormal brain waves in those with LGS, more than 90% have significant intellectual disabilities. The LGS Foundation is also working hard to change this. It is believed that seizure control is key to improving developmental outcomes in LGS.
- A few with LGS live a generally normal life, but more than 50% with LGS suffer many LGS Associated Disorders (LAD), including communication issues, balance issues, behavioral issues, sleep disturbances, rage attacks, aggression, autistic features, and other issues.
- Those with LGS can live into their 50s or 60s but are also more likely to die prematurely due to the underlying brain disorder, seizures, injuries, accidents, aspiration pneumonia, or Sudden Unexpected Death in Epilepsy (SUDEP).