What it is
Your situation is unique, but it doesn't need to be isolating. Our free, confidential Patient Navigator & Family Ambassador program aims to connect you with emotional and practical support at every step of the journey.
Request an Ambassador
Request an LGS Family Ambassador
Complete the six required fields below, then tick the consent checkbox and select “Email my request to the Foundation”. Additional details are optional. Fields marked * are required. Your details are emailed to FamilySupport@LGSFoundation.org for support follow-up and are not saved as a personal record in this app. A private submission timestamp is retained to limit repeated emails. Share only what you are comfortable sending by email.
Sign in to send an email request. No login is needed to read the resources or use the Foundation’s official form.
Sign in to send a requestOpens the Foundation’s form in a new tab (EveryAction)
This alternative form is provided by EveryAction. Your information goes directly to the Foundation and is not saved in this app. Its date fields and validation are managed by the Foundation’s form provider.
Opens the LGS Foundation request form on EveryAction
Scroll within the form to complete all fields. After you see the request confirmation, select “Mark done” below.
Opens your email app (FamilySupport@lgsfoundation.org)