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About LGS Treatments Kit
Your Guide to “What’s Next” in LGS Care
Treatment Trackers
Use each tracker digitally, or download its blank, single-page PDF for printing. On your phone, open the downloaded PDF and choose Print from the share menu or PDF viewer. Formatted for US Letter, landscape.
Current Medications and Supplements
Surgeries, Current Diets, Devices & Alternative Therapies
Daily Medication Administration Tracker
Past Medications and Supplements
Past Diets, Devices, and Alternative Therapies
Anti-Seizure Medications
List of Anti-Seizure Medications
Medications for Seizures in LGS (FDA-Approved)
Second Generation (introduced 1960–1975):
- Clobazam / Onfi (pill), Sympazan (dissolvable strip)
Third Generation (introduced 1980 or later):
- Lamotrigine / Lamictal
- Felbamate / Felbatol
- Topiramate / Topamax (pill), Eprontia (liquid)
- Rufinamide / Banzel
- Cannabidiol / Epidiolex
- Fenfluramine / Fintepla
Medications for Seizures in Epilepsy (FDA-Approved)
First Generation (introduced before 1960):
- Phenobarbital / Phenobarbital
- Phenytoin / Dilantin
- Ethosuximide / Zarontin
Second Generation:
- Valproic Acid / Depakene
- Divalproex Sodium / Depacon and Depakote
- Clonazepam / Klonopin
Third Generation:
- Vigabatrin / Sabril
- Zonisamide / Zonegran
- Oxcarbazepine / Oxtellar XR, Trileptal (contraindicated in LGS)
- Gabapentin / Neurontin
- Tiagabine / Gabitril
- Levetiracetam / Keppra
- Pregabalin / Lyrica
- Stiripentol / Diacomit
- Lacosamide / Vimpat
- Eslicarbazepine Acetate / Aptiom
- Retigabine / Ezogabine
- Perampanel / Fycompa
- Brivaracetam / Briviact
- Everolimus / Afinitor
- Cenobamate / Xcopri
Medications for Seizure Clusters
aka: Rescue/Emergency Medications, FDA-Approved
- Diazepam Rectal Gel / Diastat
- Diazepam Nasal Spray / Valtoco
- Midazolam Nasal Spray / Nayzilam
Clinical Trials for Seizures in LGS (Medications & Rescue Therapies)
There are several ongoing clinical trials and research studies that your loved one may be eligible to participate in.
Read Clinical Trials for Seizures in LGS in the app
Summary of Antiepileptic Drugs in the United States — Great In-Depth Resource!
Loscher & Klein, 2021
Tracking Anti-Seizure Medications
It is Important to Track Your Loved One's Treatments
Use this handy tracker to track current treatments or use your own.
Current Treatments & Supplements Tracker
Use this handy tracker to track treatments no longer used.
Past Treatments & Supplements Tracker
Use this handy tracker to track if medications are given each day.
Medication Administration Tracker
The worksheet layouts from the kit are included below. Print the original PDF for paper copies.
List of Current Medications Tracker
List of Current Medications & Other Treatments
Current treatments and their effects can be hard to keep track of in LGS. This tracker might help.
What prescription and non-prescription medications are they on now?
Worksheet layout from the kit · Print the PDF to complete on paper.
Current medications
- Medication
- Dose
- Times given
- Does it help?
- Side effects & other notes
List of Surgeries & Diets Tracker
Worksheet layout from the kit · Print the PDF to complete on paper.
Current devices, diets, and surgeries
- Device, diet, or surgery
- Date of procedure
- Does it help?
- Notes about the device, diet, or surgery
Daily Medication Administration Tracker
Daily medications can be hard to keep track of in LGS. This tracker might help.
Daily Medication Tracker
Did they get their medication each day this week?
Enter the medication, time, and dose, check the days it was given, then choose Save entry. Records are saved only in this browser on this device.
Your unfinished entry is not included when printing. Save entry to include it, or print saved entries without closing your draft. Print saved tracker opens a print-friendly version of this tracker, including saved entries for the selected week. Use your print dialog to print or save as PDF. Save any changes to tracker details first.
Check only when given. An unchecked box means not recorded.
| Time | Medication | M11/2 | T11/3 | W11/4 | T11/5 | F11/6 | S11/7 | S11/8 | Dose | Entry actions |
|---|
No medication entries for this week yet. Complete the form above and choose Save entry to begin.
List of Past Treatment Trackers
List of Past Medications & Other Treatments
Past treatments and their effects can be hard to track of in LGS. This tracker might help.
What prescription and non-prescription medications have they been on?
Worksheet layout from the kit · Print the PDF to complete on paper.
Past medications
- Medication
- Dose
- Times given
- Did it help?
- Side effects & other notes
Past devices, diets, and surgeries
- Device, diet, or surgery
- Date of procedure
- Did it help?
- Notes about the device, diet, or surgery