LGS Foundation · 6030 Santo Road, Suite 1, Unit 420878, San Diego, CA 92142 · www.LGSFoundation.org · (718) 374-3800
Hello,
Over twenty-five years ago, my healthy, typically developing two-year-old daughter, Savannah, had her first seizure. More than 40,000 seizures would follow over the next 16 years. Our family sat by helplessly as we watched the seizures evolve into Lennox-Gastaut Syndrome (LGS) and cause more and more brain damage in our little girl. We felt so isolated and alone. In 2008, the LGS Foundation was founded so families like mine would not be alone. Our family was so happy to finally find our LGS community of support.
We are grateful for the opportunity to support you and your family. We remember the early years, the day we received the LGS diagnosis, and having so many unanswered questions. We are here whenever you need us. Whether you actively comment and ask questions, or quietly sit back and observe, there are no requirements other than feeling supporting and being respectful of where everyone is on their LGS journey.
As you learn more about the LGS Foundation, we want you to know that families are at the center of all we do. Your voice and input are always appreciated and valued.
Please feel free to reach out if you want to be connected to an Ambassador, know more about any of our programs, or just ask a private question.
In hope,
Tracy Dixon-Salazar, PhD
Executive Director
info@lgsfoundation.org (tap to email)