What it is
Looking for support? Meet thousands of others who understand what it is like to live with LGS. You're Not Alone. The LGS Foundation moderates several social network groups for those affected by LGS. Get the emotional support you need from others in similar circumstances, and gain practical advice and insights on managing treatments or therapies for LGS.
Global Caregiver Support Community
This is the LGS Foundation's main online, private family support community and has over 6,500 members. Primary caregivers of loved ones with LGS may join this group and ask questions and seek support from other caregivers who are navigating the LGS journey. This group is only for LGS caregivers.
Regional Caregiver Communities
With the help of our LGS Family Ambassadors, we have created local/state/regional online support communities for families to connect and share local resources.
LGS Support Groups
These monthly support groups are only available to LGS caregivers who are members of the LGS Foundation's Global Caregiver Support Community.
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