About LGS Treatments Kit

Introduction to Types of Treatments for LGS

There are no cures for LGS, but numerous treatments for seizures are available.

Seizures are the main symptom in LGS, and all with LGS have epilepsy (recurrent seizures). The goal of seizure treatment is no seizures with no side effects. This is often not possible in LGS. The goal for many families often becomes to minimize seizures, minimize treatment side effects, reduce the total number of medications a person takes, and attain the best quality of life for the individual with LGS and their loved ones.

The LGS Foundation is dedicated to finding better treatments and cures for LGS.

There are 5 main types of therapies that families might use to treat seizures in LGS.

Anti-Seizure Medications

There are 8 FDA-approved medications that treat seizures associated with LGS. There are also over 20 FDA-approved medications that treat specific seizure types found in epilepsy. Individuals with LGS are often on a cocktail of multiple medications to treat their seizures.

Diets

Several diets are frequently used to treat seizures in LGS. The Ketogenic Diet is a high-fat, restricted carbohydrate diet used to treat epilepsy since the 1920s. Modified variants of the Ketogenic Diet include the Modified Atkins diet and MCT Oil diet. The Low-Glycemic Index Diet is also often used in LGS.

Neuromodulation

Neuromodulation is the use of technology to alter how nerves function. It is another option in addition to anti-seizure medications and diets. The main neuromodulation treatments that are used in LGS are Vagus Nerve Stimulation (VNS), Deep Brain Stimulation (DBS), and Responsive Neurostimulation (RNS).

Epilepsy Surgery

Epilepsy Surgery is any type of brain or nerve surgery where parts of the brain or nerves are removed, disconnected, destroyed, or stimulated to stop seizures. Numerous types of surgery exist. The most common brain surgeries used in LGS are (1) Corpus Callosotomy and (2) surgery to implant Neuromodulation devices.

Complementary and Alternative Therapy

Complementary and alternative therapies are products or practices used together with standard medical care. These include practices such as massage, acupuncture, chiropractic, homeopathy, naturopathy, and others.

This Kit contains info on all these types of treatments. Pace yourself. You don't have to read it all in a day. You can always come back to it as you need to.

Want to Learn More?

What is LGS? What causes LGS? How is LGS diagnosed? — Read About LGS in the app