Programs Guide
LGS is hard. Finding information doesn't need to be.
EDUCATION
New Family Welcome Kits
New Family Welcome Kits are for families new to LGS and the LGS Foundation. Each kit provides educational materials and info on where to find help.
LGS Learning & Resource Center
Check out the LGS Learning and Resource Center on our website. This great tool has an abundance of info on topics related to LGS.
Navigating LGS Video Series
The LGS Foundation is at the forefront of LGS education. Videos by experts from all around the world will help you navigate the LGS maze.
About LGS Treatments Kits
About LGS Treatments Kits are for families who are considering "what's next" in treatment. The kit is filled with current treatments, information on clinical trials, and tips on how to maximize your time with healthcare providers.
FAMILY SUPPORT
LGS Online Support
Get the emotional support you need from others in similar circumstances and gain practical advice on managing LGS in this judgment-free space.
Upcoming Events & Activities
See our calendar and join us for one of our in-person events such as our annual walk, awareness dinner, or family conference. In-person events allow families to truly connect.
Elevate Patient Assistance Program
This program provides financial assistance to individuals with LGS to help pay for durable medical equipment not covered by insurance.
LGS Patient Navigators & Family Ambassadors
Connect with an LGS Navigator and Ambassador today. These volunteer caregivers share their knowledge about managing LGS with others.
RESEARCH PROGRAMS
AWARENESS & EDUCATION
International LGS Awareness Day®
November 1st is annual International LGS Awareness Day. Each year the Foundation organizes in-person and online events worldwide.
Advocates for LGS
Advocates for LGS bring the patient-family voice to members of the federal & state governments & advocate for better research & care for those with LGS.